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Toebra
Toebra Dork
5/12/19 10:40 p.m.

Dilemma that warrants an adult discussion.  While I realize this has been a difficult subject to debate without degenerating into heated argument, I am optimistic that will not be the course this thread takes.

I have an example that I feel nicely illustrates a lot of the challenges we face regarding healthcare delivery in the United States.  People go to the hospital and are waiting for care in the Emergency Room for hours, overnight even, sorry no beds available.  Hospital care is very expensive.  People look at their bill and it is eleven bucks for an aspirin, bandaid, or whatever crazy example you care to cite.  Bear in mind when considering this, what is billed is not what insurance companies allow, and allowed charges are usually not paid at 100%  If you have suggestions for the insurance companies or healthcare providers screwing people out of money, please take them to another thread.

I have been involved in the care of a guy who happens to be about the same age as I, on paper anyway; IRL this is not the case.  He is a homeless diabetic crystal meth aficionado.  Had a hole that went all the way through his foot that was filled with rotting tissue.  Came in septic, where you are over whelmed by infection to the point you are fixin' to die.  His situation is complicated by the HIV and Hepatitis C infections he has.  Not only that, but he also is being treated for colorectal cancer.  Had surgery, done by the local bad ass MFer oncology surgeon.  Consequence of this is a colostomy, which is the side exit for the poop, radiation and chemo ongoing, the whole nine yards.

As I said, he has a fetid hole in his foot when I meet him.  Initially refused surgery when I talk to him Monday at 0800.  I let the doc managing the patient know he said GTFO to me.  He gets the ortho hospitalist to go see him, patient told them okay do surgery tomorrow.  Tuesday morning he tells the other guy to F** OFF, so they call me to see if I will try and talk some sense into him.  I go by and he is all ready to go get this foot fixed, I want to do whatever it takes, don't want to lose this foot.  I tell him he needs to do like I say, or the next guy he sees will be cutting off his leg.  Clean the rotten stuff out, flush a ton of irrigation through it, put a wound vac on it, and it does surprisingly well post operatively, considering how poorly he followed instructions.  He walks down stairs to smoke cigarettes a bit more often than is therapeutic.

The wound vac did not work out, kept losing the seal when he walked on it.  I was apparently unclear when I said, "Pretend like that foot is gone, don't even touch it to the ground, or you won't have to pretend, you lose the leg."  Still did pretty well, all things considered, even without the wound vac, which would have healed that thing up far, far more quickly.  Typically, the patient goes to a convalescent facility shortly after this sort of surgery, much more economical than a hospital.  Nobody will take him though.  Any facility that might, knows better because this guy has a habit of walking away from care facilities, or being verbally and physically abusive to the people trying to help him.  Due to his diseases, he is in an isolation room.  Due to his temperament, he is in a hospital, rather than a convalescent home.  A week after surgery, the police came to talk to him, because after he declined assistance changing his colostomy bag(B*tch leave me alone).  He was not successful in his efforts to change his colostomy bag, so he shat the bed.  Nurse's aid comes in to change the bedding.  "I need you to move so I can put clean sheets on your bed."  He goes off on her.  She could ask him to move, instead of telling him what to do, GTFO B*TCH, leave me alone.  He is literally laying in is own feces, that are infectious with HIV and Hep C virus, over and above the basic nastiness of cleaning up crap, and she needs to put clean sheets on the bed for him.  He tells her GTFO, I have a gun in that drawer, leave me alone.  So she leaves and calls security.  Security calls the cops.  I get there between the time the cops were called and they arrive.  He has his feces on my dressing.  I am not okay with that, so I am in the midst of changing the dressing when the security guy comes back from calling the cops, I am just getting started.  Security guy is a large young man, and stands in the doorway watching while I am doing my thing, which I found a little unusual.  I was not hip to the fact he claimed he had a gun, which I would not believe for a second if he made the claim.  If that guy had the dough for a gun, he is going to be a high MFer 10 times out of 10 before he purchases a fire arm, say if he found a gold Krugerrand in his Christmas stocking, he buys a bunch of dope.  Patient was griping before we started about how much his foot that is so numb he can walk on a hole in the bottom the size of a silver dollar and not bat an eye, is going to hurt when we change his dressing.  I did not tell him the nurse had morphine she is about to give him, more so he is less unpleasant after I leave, than for any pain he is going to claim to feel.  I am starting to wrap things up when John Law arrives.  He asks the guy why he is threatening people trying to help him.  Guy denies it, she did not hear what I said, there is gum in the drawer.  I say, "You threatened her with a stick of gum, really?"  He does not need any assistance, holds his hand out like a traffic cop would and gives me the please don't try to help me look.  Guy claims has not been abusive or threatening, which is a lie, because he does not want to get handcuffed to the bed.  It probably would not occur to you that you might get handcuffed to a hospital bed, unless that sort of thing has happened to you in the past.  Cop asks if he has any warrants, he says no, I have not been arrested in 35 years, which I am confident is also a lie.  Cop tells him he does not want to have to come back here again, talks to the guy a bit, then takes off.  5 minutes later, cop returns, to stress that he does not want to hear any more abuse complaints, or he will make life rough when he gets out of the hospital.  Patient asks if he really walked all the way back up just to tell him that.  Yes, it is that important, so I came back.  These people are trying to help you, don't give them a hard time, or I will give you a hard time when you get out of here.

Day after the stick of gum incident, he tells his nurse he is going to leave in two days, and will then return, rather than stay in the hospital and get IV antibiotics.  Few days later, he is gone.

Police bring him back a few days after he left.   Report read disheveled, incoherent man stumbling around leaking something from his side.  A cop sees that and is thinking, "That guy got shot."  Turns out it was not a GSW or blood, fecal material, remember the colostomy thing.  Foot got a lot worse while he was off smoking crystal meth, bone sort of disintegrates with infection, radiographs are quite impressive compared to the prior to going walkabout views.  He currently has osteomyelitis(bone infection) in his first and second metatarsal heads.  To get it to heal, and stay healed, would need to take off his forefoot, right behind where the toes attach to the foot.  He declines, if it was only the toe, okay, but he does not want half his foot cut off.  I read   him what the infectious disease specialist had to say, which is pretty much what I have been telling him.  He has spent about 42 or 43 of the last 50 days admitted to the hospital.  He is going to be in a hospital isolation room for the foreseeable future.  He has left AMA(against medical advice) from an acute care facility at least 4 times in the last couple months.  His care for the last few months has cost literally millions of dollars. He is not going to "get better" as long as he keeps bailing in the middle of treatment.  Taking care of this guy is like Sisyphus pushing a rock up a hill.

I suggested we have him arrested for assaulting the staff, which would apply when he is flinging his infectious poo.  If he is incarcerated, he can't very well leave AMA.  I was told this would not fly. 

This guy is not unique, and this sort of thing takes up inpatient beds from people that would almost certainly benefit more than this guy, who technically does not need to be admitted to the hospital, but no other facility will accept the patient as a transfer, so he stays in an isolation room in the hospital.  I am not that interested in operating on this guy, but would because it is the best shot to salvage the leg.  If he loses the leg, odds are he spends the rest of his days in some sort of facility, a hospital, given past experience.  That would be pretty messed up, and very expensive.

What do you do with a patient like this?  His past and current actions have had a significant negative impact on his health.  Should this color the decisions made on his care?  Should you you take his abusive and assaultive behavior into consideration?  Do you continue to do everything possible to try and help them, despite their self destructiveness and non-compliance?  Should you somehow try to compel their compliance, cuff them to the bed and refuse to let them walk around, smoke cigarettes?  Should their care be somehow reduced or restricted?  Resources are not limitless.  This guy's pharmacy bill alone is sky high, Daptomycin ain't cheap.  I don't know what anti-retrovirals cost for HIV, or the going rate for chemotherapy for the cancer is, but they are pricey, no doubt.  

I don't know that an answer is even possible.  I am talking about one guy, but it is not one guy, it is maybe thousands of guys and gals.  


Sorry this post is like War and Peace long, but it has been on my mind.

Streetwiseguy
Streetwiseguy MegaDork
5/12/19 11:01 p.m.

Of course, the logical answer is to let him die, as he so obviously wants to do.  However, we are humans, and it goes against our nature to not do our best.  Then, you get into the whole "Death Panel" idea if we set up a committee to decide such things.

90 year old with dementia falls and breaks a hip.  Do you repair the hip, or confine them to bed until they get pneumonia and die?

A child has a series of strokes during a bad delivery.  Do you set them outside to starve?

Kobayashi Maru, my friend.

Robbie
Robbie UltimaDork
5/12/19 11:22 p.m.

Sometimes, dropping $200 on the ground seems like a really good solution.

However, the morals involved in such a thing are REALLY complicated.

I don't know how to help someone who doesn't want to help themselves. Further, IF someone doesn't want to help themselves I'm pretty sure that in itself defines mental illness. That's before you even get into the next layer of "helping" all the people who are in some way connected to the patient.

"Help" often makes the implicit assumption that you know what is best for someone better than they do. Quite common, of course, but also quite commonly not true either.

Whole lot of I don't know.

bentwrench
bentwrench SuperDork
5/12/19 11:30 p.m.

First the addict has to admit they have a problem.

Then they have to WANT to get better....

I'd take him to the nearest NA meeting, no farther.

You can't make him better, he has to do that for himself. PERIOD

Maybe he'll bottom out when he looses his foot, clearly he is headed that direction.

Maybe he'll OD on his next binge. Not your problem.

It is not healthy for you to get sucked into his slow motion suicide. If you can't deal with that you should seek a different situation, before you find yourself sharing a park bench with him.

mtn
mtn MegaDork
5/12/19 11:36 p.m.

You give them the chance to be a respectful human being, but when they stop that, ultimately your hand is forced: let this person die. They’ve had their chances. You cannot help them unless they want to change. This guy doesn’t want to, or he can’t. You can’t extend this mans life, his living is over. This is just extending his death. If he comes in again, I’d consider it hospice and do as much in your power to make him comfortable, and as little as required to extend his life.  

mtn
mtn MegaDork
5/12/19 11:40 p.m.

Also, another thought. Frankly, this guy sounds terminal. Throw out the bad behavior. Throw out the meth, pretend he has great insurance. Do you think that a person who’s aged poorly, with Hep C and HIV, with cancer and bad bones is going to live even a year? 

 

Pete Gossett
Pete Gossett MegaDork
5/13/19 5:56 a.m.

I think problem #1 is you have a poo-leaking, HIV & hep-C positive biohazard that shouldn’t be on the streets potentially infecting others. As a public safety concern that needs stopped ASAP. 

Unfortunately modern US society isn’t equipped to deal with this. As you already stated, the prisons aren’t capable of dealing with someone with his medical conditions, medical facilities that can handle his physical problems aren’t good at dealing with his emotional & addiction problems, and vice-versa. 

No one likes the idea of leper or penal colonies, but that’s essentially what already exists in the homeless encampments of most major cities. Ultimately there needs to be a way to separate someone like this from the rest of society, and unfortunately in his case, allow him to be left to his own devices for the short time he has left. 

frenchyd
frenchyd UberDork
5/13/19 6:33 a.m.

In reply to Toebra :

It is easy to sit on the sidelines and write him off.   Not so easy as a caring human being  to do so.  

America is a free country.  We can offer  him a choice, Yet as private citizens we cannot force another person to any given path.  

I’m Tempted at this point to interject my religious values but since they are mine, of no use to you at this point except to offer the suggestion of presenting this case to religious authorities.  Seek their participation and support.  

porschenut
porschenut Reader
5/13/19 7:36 a.m.

It seems like he is trying to kill himself and the system keeps getting in the way.  Even allowing for a high degree of mental illness he seems suicidal to me.  What he has gone through has probably inflicted a high amount of physical pain on his body, yet he is not listening to his body's pain and letting others help him.  Instead he ignores the pain and makes decisions that will inflict more pain knowing they hasten his demise.

Floating Doc
Floating Doc Dork
5/13/19 7:44 a.m.

I shared this with my genius wife. Her suggestion, hospice.

 I'm so glad I only work on cats and dogs!

Please forgive me if I add a little of my personal situation here, it's just hard to leave it out.

My brother is not a lot better than this guy. Non-healing palm sized ulcer on his chest for years. It's most likely squamous cell carcinoma and he's too crazy to get it removed. The only thing keeping him off the street is that he's squatting in a house with no electricity, water, or sewer.

After getting burned many, many times, I have 99% removed him from my life. Speaking for both himself and my dad, he told me, "We don't care about you, all we want is your money." 

My dad died last month, so now it's just him.

The remaining 1% of him in my life is only because I have to think about him.

pinchvalve
pinchvalve MegaDork
5/13/19 8:07 a.m.

My question is where is all the money coming from to keep treating this idiot? You hear so many stories about people not being able to afford even basic care, how does a crackhead get all of these expensive procedures? How can others more deserving of care get on the same gravy train? 

dculberson
dculberson UltimaDork
5/13/19 8:16 a.m.
pinchvalve said:

My question is where is all the money coming from to keep treating this idiot? You hear so many stories about people not being able to afford even basic care, how does a crackhead get all of these expensive procedures? How can others more deserving of care get on the same gravy train? 

Go into the ER with a life threatening condition, and they will treat you. Nobody is sent away. That's why so many people without insurance end up using the ER when they have a cold, and why ERs can have such terrible wait times for less than extreme situations.

Nick Comstock
Nick Comstock MegaDork
5/13/19 8:17 a.m.

Watch the documentary "Seattle is Dying" it's on YouTube. 

I wish I could remember the details but in it they showcase a program that I believe has the best chance to deal with this issue. 

It's worth the watch.

KyAllroad (Jeremy)
KyAllroad (Jeremy) UltimaDork
5/13/19 8:19 a.m.

Toebra, you are describing what burned me out on nursing in just 4 years.  I worked in the ER and saw these guys every single day.  Every day a fresh patient with long term self inflicted lifestyle injuries that become chronic conditions.  If we want to address it from a cost/benefit ratio, clearly FAR too much money is thrown down these human rabbit holes.  Unfortunately (IMO) we have gone from "first do no harm" to "do every berkeleying thing that modern medicine has ever invented to prolong their heartbeat by just one more day!!!"

More (many many more) people just need to be allowed to die.  Everyone does, it's as natural as birth, but somewhere along the way we developed this fantasy version of reality in which death can be defeated.  Spoiler alert, it can't. 

Doctors these days seem to almost sell patients on treatment, that needs to stop.  More patients should receive palliative care ONLY.  Someone like your guy should have gotten a hospice room and all the narcotics he wants, perhaps on a locked ward so he cant spread his lovely infections around. 

The oncology surgery should never have been done in the first place, that complicated his care and led to some of his other problems.  That's another one of the problems, so many medical professionals have an attitude of "not on my watch".  The oncology doc doesn't really care if patient X dies of a heart attack so long as they don't die of cancer and drive their numbers down.

Toyman01
Toyman01 MegaDork
5/13/19 8:24 a.m.

A meth head walked up to me a couple of weeks ago. Open sores on his face and arms. He wanted money for food. I gave him a $20 figuring he'd make a beeline for his dealer. 

The look on his face was one of astonishment. When he made a beeline for the Popeyes across the parking lot, I was also astonished. 

The truth is you can't save everyone and to try to force it is worse than letting them kill themselves. Do what you can and let the cards fall where they may. 

 

Brett_Murphy
Brett_Murphy UltimaDork
5/13/19 8:42 a.m.
pinchvalve said:

My question is where is all the money coming from to keep treating this idiot? You hear so many stories about people not being able to afford even basic care, how does a crackhead get all of these expensive procedures? How can others more deserving of care get on the same gravy train? 

I don't think that medical providers are legally allowed to refuse treatment.

In this case, he is being billed for it. He isn't paying. So, it goes to collections. He doesn't pay that, either. So, it gets written off. Welcome to for-profit healthcare, where those that can pay wind up paying for those that can't pay, anyhow.

So, we're footing the bill by paying $11 for a Tylenol if we pay out of pocket. Or, we're paying elevated health insurance premiums. The health insurance companies (at least in my state) have to pay 80% (or something like that) of their overhead towards medical costs. So, they don't really care if a procedure is $200 or $2000, a single Tylenol is $0.10 or $10.00 as long as they have the money to cover it. 

Medicaid works a bit different- the government negotiates prices down and pays them. Google "Marilyn Bartlett and Montana"

 

Duke
Duke MegaDork
5/13/19 8:42 a.m.
dculberson said:
pinchvalve said:

My question is where is all the money coming from to keep treating this idiot? You hear so many stories about people not being able to afford even basic care, how does a crackhead get all of these expensive procedures? How can others more deserving of care get on the same gravy train? 

Go into the ER with a life threatening condition, and they will treat you. Nobody is sent away. That's why so many people without insurance end up using the ER when they have a cold, and why ERs can have such terrible wait times for less than extreme situations.

Why do you think that aspirin costs $12?

bobzilla
bobzilla MegaDork
5/13/19 8:51 a.m.

It's probably a sign of me going feral or at the least turning curmudgeonly (and not the great member we had). Offer the help. They don't want it see ya. One less problem for humanity. I just no longer care about those that can't be bothered to care for themselves. It's one thing if they're trying, another when they don't. 

Sometimes you just have to cut bait and move on. This probably makes me a horrific human being but I've long since stopped caring what others think of me (with a few exceptions). 

alfadriver
alfadriver MegaDork
5/13/19 8:59 a.m.
Duke said:
dculberson said:
pinchvalve said:

My question is where is all the money coming from to keep treating this idiot? You hear so many stories about people not being able to afford even basic care, how does a crackhead get all of these expensive procedures? How can others more deserving of care get on the same gravy train? 

Go into the ER with a life threatening condition, and they will treat you. Nobody is sent away. That's why so many people without insurance end up using the ER when they have a cold, and why ERs can have such terrible wait times for less than extreme situations.

Why do you think that aspirin costs $12?

Yea, based on doctors and what their goal is- healtcare is already a right.  The issue is about paying for it.  So everyone gets treated, not every bill ends up getting paid- or it gets paid by a combination of Medicare/Medicade and some very generous donors.

Hard to deal with people who don't want to take care of themselves.  Very hard.  Good luck, and try to find a way to relieve your guilt that will certainly come of this.  

1988RedT2
1988RedT2 UltimaDork
5/13/19 9:08 a.m.

I got nothin'.

Pete Gossett
Pete Gossett MegaDork
5/13/19 9:49 a.m.

On second thought, here’s another idea: give a script for OxyContin & send him on his way. Maybe he’ll sell/trade them for meth, or maybe he’ll just eat a handful and make his problems all go away?

russde
russde New Reader
5/13/19 9:59 a.m.

No real answer from me either.

Just a few notes...socialized medicine is coming, right or wrong (my opinion the latter, but what we have now sucks too, so there's that). I've been in and around medicine all my adult life, my wife is a military doctor, leading to my next point. Military medicine is the only example of socialized medicine that works (again, IMO) BUT the big difference is that the members have a vested interest in STAYING healthy, so they listen to the doctors and generally follow their advice...something lacking in many other situations.

I did totally identify with OP's post though, I work for a podiatrist. Amazing what people will accept as normal, or unchangeable, as their body literally falls apart; and those are the non-mentally challenged ones.

R

bobzilla
bobzilla MegaDork
5/13/19 10:05 a.m.
Pete Gossett said:

On second thought, here’s another idea: give a script for OxyContin & send him on his way. Maybe he’ll sell/trade them for meth, or maybe he’ll just eat a handful and make his problems all go away?

I'm perfectly fine with that option too. 

mtn
mtn MegaDork
5/13/19 10:14 a.m.
Pete Gossett said:

On second thought, here’s another idea: give a script for OxyContin & send him on his way. Maybe he’ll sell/trade them for meth, or maybe he’ll just eat a handful and make his problems all go away?

While this is probably an appropriate solution for THIS situation, if this is the case, I think Toebra would want this thread deleted.

racerdave600
racerdave600 UltraDork
5/13/19 10:14 a.m.

I've witnessed some of this first hand from my paramedic son and his wife, an ER nurse.  The above is a sad case, but it happens everyday, in every city in the US.  We know the man that owns our local hospital, and they write off something like $5 million a year from uninsured patients.  Many of these are homeless or illegal.  Many of them are lonely and just want someone to talk to, so they call an ambulance and head to the hospital for a problem that doesn't exist.  They will change their symptoms constantly but you have to take them seriously and do your best.  It's a real issue.  Our emergency room has something like 128 beds, and most days they are full with people sitting in the waiting room.  

On the other side, my ex brother in law was an alcoholic for years, much of the time living on the streets.  He used up his mother's complete life savings draining her dry so he could drink.  As cold as it seems, you have to let them hit the bottom and want help, otherwise it does no good at all.  He finally turned his life around but not until the family stopped enabling him.  Unfortunately they found him dead a few weeks ago with an issue relating to his years of abuse.  

This topic is sad on so many levels, and it seems to be a situation that is getting worse.  

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