Karacticus said:
Going through the extensive phone interrogation associated with organ donation immediately after my Mother’s death has not encouraged me to pursue organ donation.
Was essentially a 45 minute extemporaneous review of her entire medical history.
Donating to science is different than organ donation. I don't know what donating to science entails, but organ donation is definitely not fun for the donors family.
Here is our story with it - beware, it is sad. For all of my daughters life (2 weeks), we didn't know what was wrong other than her heart wasn't working. We were warned that she likely would need a heart transplant. For an infant, that is nearly impossible - while there are plenty of adult hearts available for obvious reasons (car crashes, OD's, other accidents, etc.), usually there aren't any healthy hearts available. You're basically hoping, praying, that somebody else's infant son or daughter will pass away from something not heart related. It is not a comfortable feeling, knowing that your baby's life is dependent on someone else's baby passing away.
Well, our daughter didn't make it. It wasn't because she didn't get a heart (although she would have needed one, we found out after the autopsy), but a brain hemorrhage. We had to make the decision to remove life support, when it became apparent that the brain damage was too much to overcome. This is an obvious decision to reach, but it was the hardest decision I've ever made (we've ever made, I'm sure it was the hardest for my wife as well).
Then they asked us if we wanted her to be an organ donor. This was an obvious choice, yes--we were waiting on a heart, in the event that any child could have their life saved by anything, I wanted that to happen. I don't regret that at all. However, I was not prepared for what came next: They have to see if there is anything that can be used (for Angela, it was her kidneys - the lungs and heart were damaged) - and anyone that can use them. They said this usually takes 36 hours. They sped it up for us to 24 hours. These 24 hours were excruciating - we were ready to remove life support, but we had to wait. I'm grateful, now, because it was more time that we could hold our daughter, but it was still hard.
They couldn't use anything of Angela's (well, they may have used some skin and her corneas), and I am honestly grateful for that too. If there was something that could have been used, that would mean we would have to say Goodbye, and watch as they would wheel her into an OR to harvest the organs. I'm glad I got to hold my daughter as she passed.