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captdownshift
captdownshift UberDork
8/30/16 1:30 p.m.

the occupational therapy, the physical therapy, the expenses, the lack of being able to work, the exhaustion, the stress...

...and now I don't need to deal with it anymore. knocks on the biggest piece of Brazilian hardwood that I can find

Back on the 19th I had my 3rd round of test in 6 weeks, bloodwork, liver function, WBC and PET had all looked in the normal functioning range and clear in the previous pair. Early results the beginning of last week were in line enough to suspend treatment pending the return on some remaining blookwork results, which checked out. So 421 days after diagnosis I've been green lighted and given the all clear cancer free go get back to living life.

It's made for a strange week as early Saturday morning I lost a good friend and local SCCA volunteer, Stan, to lung cancer. I wouldn't have been able to survive this journey or my previous battle, without his support and perspective. He was the most selfless man that I've ever known a retired Naval submariner and while he wasn't a GRM'er he was active in volunteering in Pit Out, Tech, flagging and communications for the local Solo I, HPDE and MARRS series with the WDCR SCCA, also working LeMons and PCA events. He also had enough fix it where with all and basic engineering knowledge to be dangerous. In GRM style he had a red 2 dr accent that he received in exchange for repairing a neighbor's air conditioning unit. He fixed the fuel pump, which just needed the relay replaced, got some spare wheels, upgraded the pads and brake lines, welded in a rollhoop and strarted doing HPDEs in it. He called it his Rat Racer and like so many of us, he loved that silly little econobox turned race car. It was as fun and eager as he was, though quite a bit more agile. Both were an immense laugh. Stan and his rat racer embody so much of what we love about trackdays and motorsport. It's great fun being around those having fun. Services for him are tomorrow and I haven't gone more than a few hours with dry eyes since Saturday, it's going to be rough. A large part of me feels that if he lived 45 mile east of where he did, that he'd be here laughing with us today.

I have a lot of rebuilding to do in my own life. Gone are my savings, replaced with a respectable mountain of debt. Gone is the career that I loved, replaced with several stonewalls while interviewing before having received the bill of good health and my favorite, the response of, I'm sorry, but we've decided that we're just not going to fill the position at this time. Thankfully I still have my family and now I once again have my health, though with greatly reduced physical abilities and the requirement of 6-8 of therapy a week, most of which requires use of a pool.

I've had a lot of time to think about what I'd like to do once I'm able to again. Professionally it's funny, I'd like to go somewhere and contribute. It sounds so basic that it almost seems silly, but I've struggled to manage to wash a load of laundry or do a sink full of dishes for over the past year, often requiring a break to complete such a basic second nature task. In the past I've done marketing, sponsorship negotiations and deliverables, manage race series points systems, press releases, working with scrutineers and stewards to determine cause of metal to metal incidents involving multiple cars and producing the reports of such, social media content, accounts payable and receivable, bookkeeping and prior to that worked in various automotive capacities in the dealership network and independent aftermarket ranging from parts, back counter and wholesale, inside aftermarket sales, office manager and bookkeeping and service advising. I enjoyed the order of bookkeeping and managing an office, not as much as the motorsports series management, but that opportunity isn't likely to present itself again. I could be interested in learning how to physically produce something. To have a quantifiable value to a company. Though in my physical state, that could prove difficult.

Something that I'd like to do beyond my full time position is I'd like to establish a 501c3 the purpose of which would be multifaceted. First would be to raise awareness of the need and importance of regular doctor's visits and cancer screenings. I lucked out, in a big way. My cancer was discovered due to an abnormal liver enzyme level result as part of routine pre-op bloodwork for an orthopedic surgery. I was 100% asymptomatic at the time of diagnosis. The motorsports community, and particularly the grassroots DIY end of the spectrum that would rather handle and address issues ourselves, is primarily male and makes some of the absolute worst portion of the population about seeking medical attention when it's needed. Heck we seem to get a thread about every 6 weeks or so in here inquiring whether or not someone should seek medical attention. The answer is always yes. That's like when a non car friend calls you to diagnose an issue with their vehicle over the phone, hold the phone closer to the car please, I can't quite make out the issue. Everyone is aware of cancer and has been directly touched by it's presence through the death of a friend or loved one. It needs no additional awareness. Yet a large percentage of us still don't perform their due diligence regarding their own basic medical care. It's inexcusable. In doing so you're doing a disservice to your friends, families and yourselves. Don't defer maintenance on your body.

The second goal would be to raise funds for the families of those battling and those who have succumb to cancer within the motorsports community. Assisting the funding of Mike Smith's daughter Carley's education comes to mind. It's paramount that we assist the families of our friends who are no longer able to support those whom they loved.

How would this be accomplished? Well, I'm working on coming up with a catchy name, nothing that will involve the phrase "for a cure" as it's asinine to utilize those words when efforts are funding awareness and not research. Not that it doesn't mean the cause isn't a good one, after all this is going to be an awareness based group, but awareness is preventative in nature, not a cure. Once the name is selected and registered decals and shirts will be produced. Possibly hats and hoodies. Suggestions and audience participation in development of this is encouraged.

Additionally I'd like to the preparation and maintenance of a low level, low cost vehicle to be campaigned sporting livery of the organization. Think a challenge car, with safety equipment installed allowing it to compete in hillclimbs, autocross, rallycross and solo1/timetrials. Basically everything that isn't wheel to wheel. The vehicle would serve as a display piece and we would work with event organizers at autocrosses and rallycrosses to arrange for a time window of fun runs where participants could run the car on the course in exchange for a donation amount. We'd also work with vendors in supplying small prizes to those with the fastest times during the fun run portion of the event in the car. The car could travel if members had a tight group of events clustered within a certain region and if those with the ability to tow it were willing.

I can't thank the members of this forum enough for their support, both on and all the forums, and for being quite the collective group of ears during times when I've struggled to stay a float. I've learned through this in more ways than one, that if you can just manage to stay a float that you can wait until you're rested and feeling well enough again to start swimming. I'm itching to start swimming.

Huckleberry
Huckleberry MegaDork
8/30/16 1:40 p.m.

First let me say that I'm sorry for the loss of your good friend.

THen... congratulations and rock on!

berkeley cancer right in it's shiny happy person.

KyAllroad
KyAllroad UberDork
8/30/16 1:45 p.m.

Cancer free?? Dude, that's berkeleying awesome!!

Having seen so many cases end unfavorably it's really cool to hear of a success story. Bro-hug!

petegossett
petegossett UltimaDork
8/30/16 1:46 p.m.

In reply to captdownshift:

This is the absolute best post I've read on GRM since...well, probably 18-years ago when I joined! Without a doubt I know you have the determination and fortitude to make this plan a reality - you've already demonstrated that to us multiple times over the last year+. Major congratulations!!!!

captdownshift
captdownshift UberDork
8/30/16 1:49 p.m.

Fun fact, and I don't know what it says about me, but I cried much more upon hearing the good news of being cancer free then I did upon receiving the diagnosis. (The doesn't mean there weren't late nights filled with crying when I couldn't sleep from the pain or thinking too much about what was going on).

foxtrapper
foxtrapper UltimaDork
8/30/16 1:51 p.m.

alfadriver
alfadriver MegaDork
8/30/16 1:54 p.m.
captdownshift wrote: Fun fact, and I don't know what it says about me, but I cried much more upon hearing the good news of being cancer free then I did upon receiving the diagnosis. (The doesn't mean there weren't late nights filled with crying when I couldn't sleep from the pain or thinking too much about what was going on).

Congratulations!!!

But this makes sense to me. When you first get the news, it's bad, but full of unknown. Coming out of it, you have a MUCH better idea of bad parts, so the relief is worth crying over.

captdownshift
captdownshift UberDork
8/30/16 2:01 p.m.

In reply to petegossett:

I texted Dave, he's going to Skype me tonight about next month. Sounds like Pat and a few other guys might be on board as well.

spitfirebill
spitfirebill UltimaDork
8/30/16 2:35 p.m.

I'm glad to hear your good news, but I am so sorry over the loss of your friend. My best friend from high school probably won't make it a lot longer. A life of risky choices has ruined his heart.

I have had a couple of acquaintances pass away that just made me fell like I had been gut punched....repeatedly. One of them I still am not over. I heard he had died a couple of years before I was told and that was just after the Katrina disaster.

Good luck with the job hunt. Beating cancer SHOULD be a big plus on a resume.

Dusterbd13
Dusterbd13 PowerDork
8/30/16 2:40 p.m.

I'm down to help however I can. I'll even volunteer a pro-touring cars at the local events for the fun runs.

Woody
Woody MegaDork
8/30/16 2:45 p.m.

Road Trip!

cmcgregor
cmcgregor HalfDork
8/30/16 2:47 p.m.

Have you given any thought to patient advocacy as a career? It seems that with your background in marketing (among other things), you'd be a natural fit.

I work for a cancer genomics/diagnostics company, and I know that we do a lot of work on education on both the care provider and recipient side, as well as work with patient advocacy groups. I am in no way qualified or authorized to speak on behalf of the company, but I can definitely get you in touch with some people who could.

Oh, and I'm so glad to hear that you made it through to the other side.

Hungary Bill
Hungary Bill UltraDork
8/30/16 3:00 p.m.

Dude, this makes me so damn happy! Congratulations man!

Furious_E
Furious_E Dork
8/30/16 3:13 p.m.

Awesome news Captain!

Needless to say, if you're ever in need of volunteers once you get your organization up and running, be sure to post something here in GRM land. I know a few people who owe their lives to early detection as well and I'm not too terribly far away from you.

SilverFleet
SilverFleet UberDork
8/30/16 3:20 p.m.

Glad you kicked cancer in the throat and sent it packing! Cool idea with the charity too!

Duke
Duke MegaDork
8/30/16 3:22 p.m.

I've got no advice on moving forward, but an incredible amount of respect for how you've kept going so far. I have no doubt you'll bring things back together!

Gary
Gary Dork
8/30/16 3:23 p.m.

Excellent news on you winning the battle, Captain. I'm very happy to hear this.

captdownshift
captdownshift UberDork
8/30/16 3:24 p.m.

In reply to Furious_E:

You're in a location with many an automotive event nearby as well. I'll definitely be in touch.

Wall-e
Wall-e MegaDork
8/30/16 3:51 p.m.

Fueled by Caffeine
Fueled by Caffeine MegaDork
8/30/16 6:17 p.m.

I'm sorry about the loss of your friend. You are right.. Sometimes we ignore things we shouldn't and spend too much time helping others or doing "things" to notice the changes..

NOW!!!!!!

congrats.. Such wonderful news. My sister is 3 years cancer free. Keep it up.

OHSCrifle
OHSCrifle Dork
8/30/16 8:04 p.m.

Heartfelt condolences and a hearty hell yeah on the test results !

Apexcarver
Apexcarver PowerDork
8/31/16 10:00 a.m.

Absolutely great that you are out past the woods and on your way back to running in the open.

I am so terrible with names, but I have a feeling I have met Stan as I flagged SCCA, Lemons, and PCA for a time. Sad to hear of the passing of a member of that gang.

Hopefully you and I get to meet sometime soon.

Rusted_Busted_Spit
Rusted_Busted_Spit UberDork
8/31/16 10:28 a.m.

I am sorry for your loss and elated at you news. It is strange how life works sometimes.

Lesley
Lesley PowerDork
8/31/16 11:16 a.m.

A powerful and inspirational post. I'd be happy to donate artwork to the cause.

dj06482
dj06482 SuperDork
8/31/16 3:14 p.m.

I'm sorry for the loss of your friend, but am thrilled at your diagnosis. I admire your courage in battling a horrific disease, and admire your aspirations of helping increase awareness so that others don't have to go through what you did. I really like the idea of a race car as a way to promote awareness for your charity!

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